Author Archives: Jenean Kirby

We have a lot to be thankful for today! The last couple of days have been hard for Hannah.  Her pain was hard to manage- and she was not able to get comfortable.  Now that she is an expert- she has been educating us all that abdomen surgery is much more painful than spinal surgery. Continue reading “A Rough Couple of Days but things are looking UPPPP!!”

Hannah is out of surgery and in recovery. We are with her now and she is still sleeping. Dr. Bippity Bop was able to complete the Strong procedure. He commented on the fact that her duodenum was completed compacted by her anatomy. He removed her appendix, which was oversized. He is extremely positive about theContinue reading “Good news!! She is out of surgery!”

The nurse just came out and reported that everything is going well. Dr. Blippity blop is still exploring her bowl and has not made a clear decision in which procedure. I am wrapping myself in her adorable face as we wait in the waiting room. It has brought smiles to many other families – whichContinue reading “Update from the OR”

They just took her to the OR. The doctor told us to expect it to take several hours. Thank you for the love and prayers.

Hannah is scheduled to go back to the operating room tomorrow morning with Dr. Bibbity-bop.  His preferred option after much discussion will be the Strong Procedure, however, we have consented for both the Strong Procedure and the Mesentery Artery Bypass as he is not sure if there will be enough room given her anatomy andContinue reading “Back to the OR tomorrow”

Over the past week, Hannah has re-iterated several times, “I just can’t catch a break.”  One thing a parent never wants to hear is that at the second most prestigious children’s hospital, their child has stumped the most intelligent and experienced minds in pediatric medicine.  Hannah has not been able to stop vomiting, and overContinue reading “Another Surgery”

Posted by Jenean… As many of you know- I am horrible at math. Not only am I not skilled at it- but it scares me because it is a known weakness- so it is something that I actively avoid.  I joke often that I went to law school so that I never had to doContinue reading “MATH!”

Today was moving day.  We were discharged from CHOP and transported to Weisman Children’s Rehab Hospital in Marlton, NJ.  This is great news for so many reasons.  First, as Hannah will tell you-  there are many new restaurant and food options near here.  Hannah was tired of the CHOP food and the delivery places nearContinue reading “Discharge Day! Here We Come Weisman….”